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- AFSED
Association Française des Syndromes d’Ehlers-Danlos. C’est une association nationale : http://www.afsed.com/
The Ehlers-Danlos SocietyL’association The Ehlers-Danlos Society est une communauté mondiale de patients, de soignants, de professionnels de la santé et de sympathisants, […]
Mesure et évaluation du handicap : préparer un dossier via handitesthttp://handitest.free.fr/fr_abr_handised.htm
Les centres expert avec OrphanetLes centres expert avec Orphanet https://www.orpha.net/consor/cgi-bin/Clinics_Search.php?lng=FR&type_list=clinics_search_simple_shd&data_id=13266&Maladie(s)/groupes%20de%20maladies=Syndrome-d-Ehlers-Danlos&title=Syndrome%20d_Ehlers-Danlos&search=Clinics_Search_Simple&ChdId=13266&Clinics_Clinics_Search_diseaseGroup=d-Ehlers-Danlos&Clinics_Clinics_Search_diseaseType=Pat&Clinics_Clinics_Search_CnsType=n&Clinics_Clinics_Search_age=Both&Clinics_Clinics_Search_country=FR&Clinics_Clinics_Search_referenceCenter=on&Clinics_Clinics_Search_GeographicType=Cnt https://www.orpha.net/consor/cgi-bin/Clinics_Search.php?lng=FR&type_list=clinics_search_simple_shd&data_id=13266&Maladie(s)/groupes%20de%20maladies=Syndrome-d-Ehlers-Danlos&title=Syndrome%20d_Ehlers-Danlos&search=Clinics_Search_Simple&ChdId=13266&Clinics_Clinics_Search_diseaseGroup=d-Ehlers-Danlos&Clinics_Clinics_Search_diseaseType=Pat&Clinics_Clinics_Search_CnsType=n&Clinics_Clinics_Search_age=Both&Clinics_Clinics_Search_country=FR&Clinics_Clinics_Search_referenceCenter=on&Clinics_Clinics_Search_GeographicType=Cnt https://www.orpha.net/consor/cgi-bin/Clinics_Search.php?lng=FR&type_list=clinics_search_simple_shd&data_id=13266&Maladie(s)/groupes%20de%20maladies=Syndrome-d-Ehlers-Danlos&title=Syndrome%20d_Ehlers-Danlos&search=Clinics_Search_Simple&ChdId=13266&Clinics_Clinics_Search_diseaseGroup=d-Ehlers-Danlos&Clinics_Clinics_Search_diseaseType=Pat&Clinics_Clinics_Search_CnsType=n&Clinics_Clinics_Search_age=Both&Clinics_Clinics_Search_country=FR&Clinics_Clinics_Search_referenceCenter=on&Clinics_Clinics_Search_GeographicType=Cnt
